Common Mistakes Kidney Patients Make & How to Avoid Them, Part 5: Neglecting To Share Your Story

By Risa Simon

Are you and your kidney disease hiding in the closet? If so, you’re not alone. I didn’t tell a sole about my condition for years. But then I realized I was doing myself and others a disservice. It takes a village to increase awareness.  Your story can touch listener’s heartstrings—particularly when it is shared from your heart and when you expect nothing in return. Listeners not only need to learn about your situation, but they also need to know the frightening realities. Nearly 97,000 people are waiting for a kidney transplant, we have a national organ shortage and it’s a catastrophic wait for deceased organs. No doubt your story will elicit curiosity to learn more—and perhaps even do more.

Don’t fall into the trap where you think that sharing your story is pointless or that if someone really wanted to help they would have already done so. This is foolish and self-sabotaging thinking. Until others truly understand your situation and the national need, they can’t begin to imagine how they might help.  It’s your duty to become a voice for all. Hope for a better tomorrow starts with you.

Don’t miss the other posts in this series:

Common Mistakes Kidney Patients Make & How to Avoid Them, Part 1: Ignoring Your Numbers

Common Mistakes Kidney Patients Make & How to Avoid Them, Part 2: Forgetting to Ask & Tell

Common Mistakes Kidney Patients Make & How to Avoid Them, Part 3: Playing the Waiting Game

Common Mistakes Kidney Patients Make & How to Avoid Them, Part 4: Assuming Dialysis Comes First

About Risa Simon: As a motivational speaker, 3x published author, patient educator and Peer Mentor for the NKF, Risa has one goal: To empower kidney patients to become their own best advocate. Risa is the founder of Simon Says Seminars, Inc., The Proactive Path and KidneyKinships.org. Known as the kidney patient’s patient advocate, she followed the proactive systems she created for herself and others, and is now living her best life ever. This is what she wants for all transplant eligible patients. Her tips, scripts and Donor Magnet® system can be found in her book: Shift Your Fate: Life-Changing Wisdom For Proactive Kidney Patients. For more information visit: www.shiftyourfate.com

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