Food Shock—My Tips for Tackling the Dialysis Diet

By Lisa Baxter

Lisa BaxterI’ve been around kidney disease and kidney failure my entire life. My father had polycystic kidney disease (PKD) and three of my sisters and three brothers ended up on dialysis.

It wasn’t until I received a sonogram that showed cysts around my kidneys that it really hit home that I had PKD too.

I knew I would have to go on dialysis someday, but I never knew how much dialysis would impact my diet. I love food! I used to be the one with all the snacks in the pantry. All that had to change if I was going to follow the rules of the dialysis diet.

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Celebrating Freedom from Kidney Disease

By Gina Ormand

L to R: Gina, her father, and her sister Jill

L to R: Gina, her father, and her sister Jill

July 4th is the highlight of the summer, when families across America celebrate together by cooking out, relaxing and sharing stories, all in celebration of freedom.  Though I’ve always loved this holiday, Independence Day has taken on a new meaning for my family in the last few years; freedom from kidney disease.

If you have ever had a phone call that made your heart skip a beat, then you know how I was feeling in July 2007.

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FDA Approves First Non-invasive Test to Help Identify Cause of Certain Kidney Disease

By Beth Piraino, MD

Membranous glomerulonephritis

Membranous glomerulonephritis

A new blood test has been approved by the FDA to test people who may possibly have a type of kidney disease called membranous glomerulonephritis.  This is a type of kidney disease that can be treated once diagnosed.   Continue reading

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Cousins Connected by a Kidney

By Ashley Kincaid

Ashley (L) and her cousin/donor Maquia run the UAE Healthy Kidney 10K

Ashley (R) and her cousin/donor Maquia (L) run the UAE Healthy Kidney 10K

In March of 2002, my world as I knew it was rocked.  After coming down with a cold during the winter of 2002, no one thought it was a big deal, until I got really sick and had to be hospitalized.  My life-long pediatrician broke the news to us that I was experiencing irreversible kidney failure due to lupus.  We adjusted our lives, and I went off to Cornell University to begin my schooling.  I had a great freshman year, and then over the summer, I became really sick and my kidneys began to fail.  I saw my doctor at home, and tried to go back to Cornell in the fall, but I had to immediately return home and begin dialysis to prepare for a kidney transplant.  Fortunately, my mother was a match and we were transplanted on April 9th, 2004.  Fast forward 8 great years and for no definable reason, “Kinney the Kidney” began to fail and I had to search for a replacement.

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Know Your Options

By Beth Piraino, MD

Beth Piraino MDI met a 26 year old woman recently who was referred by a friend of the family for a second opinion. I seem to get a lot of new patients in this way.  She was found to have advanced kidney failure, and needed to go on dialysis immediately.  Unfortunately, the prior year she had seen her primary care doctor for headaches and was noted to have a blood pressure of 140/85.  But no kidney function tests were given.  She was placed on ibuprofen and acetaminophen, and when she still did not find any relief, she was referred to a neurologist specializing in headaches.  Migraines were diagnosed, but at this visit her blood pressure was 150/90.  Again, no kidney tests were done, but fortunately the ibuprofen, which can damage the kidneys, was stopped.

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Donor Spotlight: The Story of My Parents

By Arielle Feit

IMG_6143My parents met while they were dating other people and, at first, they really did not like each other. But a few months later, they went on their first date together to the circus and had a great time. In fact, the night ended with their engagement! Just about 32 years later, my dad finds out he needs a kidney transplant and my mom is an extraordinary match. Now I don’t know about you, but it sounds to me like they really are a match made in heaven.

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Donor Diary: Kimberly Harris and Julie Feiner

By Kimberly Harris

In 1994 my mother passed away from complications from polycystic kidney disease (PKD).  She was only 66 years old, and was shocked when she was diagnosed out of the blue 10 years earlier. There was no evidence of PKD anywhere else in our small family.

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